Background: Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching. Objective: To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing. Methods: Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors. Results: 386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94)], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%). Conclusions: A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.
Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study / Kamm, C. P.; Barin, L.; Gobbi, C.; Pot, C.; Calabrese, P.; Salmen, A.; Achtnichts, L.; Kesselring, J.; Puhan, M. A.; von Wyl, V.; Anderseck, B.; Calabrese, P.; Chan, A.; Disanto, G.; Engelhardt, B.; Gobbi, C.; Haussler, R.; Kamm, C. P.; Kagi, S.; Kesselring, J.; Kuhle, J.; Kurmann, R.; Lotter, C.; Luyckx, K.; Merkler, D.; Monin, P.; Muller, S.; Nedeltchev, K.; Pot, C.; Puhan, M. A.; Rapold, I.; Salmen, A.; Schippling, S.; Vaney, C.; von Wyl, V.. - In: JOURNAL OF NEUROLOGY. - ISSN 0340-5354. - 267:1(2020), pp. 153-161. [10.1007/s00415-019-09563-y]
Factors influencing patient satisfaction with the first diagnostic consultation in multiple sclerosis: a Swiss Multiple Sclerosis Registry (SMSR) study
Barin L.;
2020-01-01
Abstract
Background: Patient satisfaction is predictive of adherence, malpractice litigation and doctor-switching. Objective: To investigate which factors of the first diagnostic consultation (FDC) influence patient satisfaction and which topics persons with multiple sclerosis (PwMS) thought were missing. Methods: Using retrospective patient-reported data of the Swiss Multiple Sclerosis Registry from PwMS with relapsing disease onset, we fitted ordered logistic regression models on satisfaction with FDC, with socio-demographic and FDC features as explanatory factors. Results: 386 PwMS diagnosed after 1995 were included. Good satisfaction with the FDC was associated with a conversation more than 20 min [multivariable odds ratio, 95% confidence interval 3.9 (2.42; 6.27)], covering many topics [1.35 (1.19; 1.54) per additional topic], the presence of a significant others [1.74 (1.03; 2.94)], and shared decision making [3.39 (1.74; 6.59)]. Not receiving a specific diagnosis was main driver for low satisfaction [0.29 (0.15; 0.55)]. Main missing topics concerned long-term consequences (reported by 6.7%), psychological aspects (6.2%) and how to obtain support and further information (5.2%). Conclusions: A conversation of more than 20 min covering many MS relevant topics, a clear communication of the diagnosis, the presence of a close relative or significant other, as well as shared decision making enhanced patient satisfaction with the FDC. ClinicalTrials.gov Identifier: NCT02980640.I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione
