The aim of this paper is to investigate whether the right to know one’s genetic origins (RKGO) encounters significant differences in the level of guarantee when it applies to adoption, to assisted reproduction or to surrogacy. The results of this analysis are aimed at understanding the degree of effectiveness of this right in different legal systems. To this end, the main features of the right to know one’s genetic origins are carefully considered, the research being based both on legislative and on jurisdictional materials. Namely, the essay focuses on information and consent, on the structure of relevant regulation in the balance between collection and storage of personal information or protection of anonymity and privacy and, finally, on the most crucial factor for the enforcement of this right, namely time.

Biotechnologies, Birth and the Right to Know One’s Genetic Origins / Penasa, Simone; Busatta, Lucia. - In: BIOLAW JOURNAL. - ISSN 2284-4503. - ELETTRONICO. - 2021:1(2021), pp. 187-208. [10.15168/2284-4503-781]

Biotechnologies, Birth and the Right to Know One’s Genetic Origins

Penasa, Simone;Busatta, Lucia
2021-01-01

Abstract

The aim of this paper is to investigate whether the right to know one’s genetic origins (RKGO) encounters significant differences in the level of guarantee when it applies to adoption, to assisted reproduction or to surrogacy. The results of this analysis are aimed at understanding the degree of effectiveness of this right in different legal systems. To this end, the main features of the right to know one’s genetic origins are carefully considered, the research being based both on legislative and on jurisdictional materials. Namely, the essay focuses on information and consent, on the structure of relevant regulation in the balance between collection and storage of personal information or protection of anonymity and privacy and, finally, on the most crucial factor for the enforcement of this right, namely time.
2021
1
Penasa, Simone; Busatta, Lucia
Biotechnologies, Birth and the Right to Know One’s Genetic Origins / Penasa, Simone; Busatta, Lucia. - In: BIOLAW JOURNAL. - ISSN 2284-4503. - ELETTRONICO. - 2021:1(2021), pp. 187-208. [10.15168/2284-4503-781]
File in questo prodotto:
File Dimensione Formato  
penasa busatta genetic origin 2021.pdf

accesso aperto

Tipologia: Versione editoriale (Publisher’s layout)
Licenza: Creative commons
Dimensione 326.21 kB
Formato Adobe PDF
326.21 kB Adobe PDF Visualizza/Apri

I documenti in IRIS sono protetti da copyright e tutti i diritti sono riservati, salvo diversa indicazione

Utilizza questo identificativo per citare o creare un link a questo documento: https://hdl.handle.net/11572/305882
Citazioni
  • ???jsp.display-item.citation.pmc??? ND
  • Scopus 1
  • ???jsp.display-item.citation.isi??? 1
  • OpenAlex ND
social impact