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EnglishIn this paper, we report an extensive analysis that we performed in two scenarios where the care relation between doctor and patients are mediated by the relatives of the patients: Pediatric Palliative Care (PPC) and Nursing Homes (NH). When the patients are children or very old adults in the end of life, the provision of care often involve a family caregiver as the main point of contact for the health service. PPC and NH are characterized by emotional complexity, since incurable diseases expose the family caregivers to heavy careload and human distress. In this paper, we discuss our findings with a novel perspective, focusing on: information, coordination and social challenges that arise by dealing with such contexts; the existing technology as it is appropriated today to cope with them; and what we, as software researchers, can do to develop the right solutions.
Understanding how Software Can Support the Needs of Family Caregivers for Patients with Severe Conditions / Di Fiore, Angela; Ceschel, Francesco; Fiore, Francesca; Baez Gonzalez, Marcos Antonio; Casati, Fabio; Giampaolo, Armellin. - (2017), pp. 33-36. ((Intervento presentato al convegno ICSE 2017 tenutosi a Buenos Aires, Argentina nel 20th-28th May 2017 [10.1109/ICSE-SEIS.2017.5].
| Titolo: | Understanding how Software Can Support the Needs of Family Caregivers for Patients with Severe Conditions | |
| Autori: | Di Fiore, Angela; Ceschel, Francesco; Fiore, Francesca; Baez Gonzalez, Marcos Antonio; Casati, Fabio; Giampaolo, Armellin | |
| Autori Unitn: | ||
| Titolo del volume contenente il saggio: | Proceedings of the 39th International Conference on Software Engineering Companion | |
| Luogo di edizione: | New York | |
| Casa editrice: | ACM | |
| Anno di pubblicazione: | 2017 | |
| Codice identificativo Scopus: | 2-s2.0-85025825529 | |
| Codice identificativo ISI: | WOS:000414246300004 | |
| ISBN: | 978-1-5386-2673-3 978-1-5386-2674-0 | |
| Handle: | http://hdl.handle.net/11572/175921 | |
| Citazione: | Understanding how Software Can Support the Needs of Family Caregivers for Patients with Severe Conditions / Di Fiore, Angela; Ceschel, Francesco; Fiore, Francesca; Baez Gonzalez, Marcos Antonio; Casati, Fabio; Giampaolo, Armellin. - (2017), pp. 33-36. ((Intervento presentato al convegno ICSE 2017 tenutosi a Buenos Aires, Argentina nel 20th-28th May 2017 [10.1109/ICSE-SEIS.2017.5]. | |
| Appare nelle tipologie: | 04.1 Saggio in atti di convegno (Paper in proceedings) |
File in questo prodotto:
| File | Descrizione | Tipologia | Licenza | |
|---|---|---|---|---|
| fiore2017icse.pdf | articolo principale | Post-print referato (Refereed author’s manuscript) | Tutti i diritti riservati (All rights reserved) | Open Access Visualizza/Apri |
| 07961665.pdf | Versione editoriale (Publisher’s layout) | Tutti i diritti riservati (All rights reserved) | Administrator |
http://hdl.handle.net/11572/175921
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